Patient Data Gateway
A unified system that integrates patient-derived data across platforms and projects.
There is growing demand for platforms that integrate data not only from research instruments (e.g. medical imaging equipment) but also patient information collected outside of controlled settings that allow for better study of real-world and long-term health variables.
The use of data generated through wearable devices, mobile devices, or online collection of patient-reported experiences and outcomes presents numerous data management challenges. This includes requirements for advanced privacy and security controls and systems, technical issues associated with complex data sources (e.g. streamed data), as well as challenges in integrated with data collected in other contexts.
The Patient Data Gateway, is a platform that facilitates direct, consistent and standardized data capture of diverse data types from research study participants in real-world settings. The Patient Data Gateway builds on core Indoc infrastructure which enables researchers to collect, manage, analyze and share their study data by introducing participant engagement tools, processes and interfaces. Once integrated, the Patient Data Gateway will not only enable information and data to be shared with researchers and clinicians, but also with study participants and caregivers, promoting improved participant engagement and empowerment in research.
The work on this project has been supported by funding from CANARIE through its Research Data Management Program.